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Výstupy z registru ČNHP za rok 2023: hemofilie
The status of care for persons with haemophilia registered within CNHP registry Annual Report 2023
Sample size, valid records / This slide describes the process of records‘ validation within the registry. All patients have signed IC.
Persons with haemophilia (PWH)
Centres participating in CNHP
Basic demographics
Persons with haemophilia and inhibitors in 2023
ABR and treatment regimens in patients with inhibitor
ABR according to treatment regimen in PWH with inhibitor
Demographic characteristics Haemophilia A
Severity of haemophilia A
Age at diagnosis according to severity of haemophilia A
Actual age according to severity of haemophilia A
Hepatitis (ever) experienced
Hepatitis (ever) experienced
HIV
Treatment outcomes and bleeding frequency Haemophilia A
Data from year 2023 – sample size
Frequency of bleeding requiring treatment in 2023
Location of bleeds in 2023
Location of bleeds in 2023
Preventive administration in 2023
Preventive administration in 2023
ABR according to treatment regimen Haemophilia A without inhibitor
Annual bleeding rate according to treatment regimen
Annual bleeding rate according to treatment regimen
ABR according to treatment regimen and age
Joint and other bleeds according to treatment regimen and age
Location and etiology of bleeds
Detailed treatment of bleeds
Location and etiology of bleeds
Detailed treatment of bleeds
ABR according to centres Haemophilia A (PWHA)
Annual bleeding rate on permanent prophylaxis
Annual bleeding rate on permanent prophylaxis
Annual bleeding rate regardless prophylaxis
Annual bleeding rate regardless prophylaxis
Prophylactic regimens and treatment outcomes
Prophylactic regimens and treatment outcomes
Type of treatment (subgroup of treated patients)
Type of treatment (subgroup of treated patients)
Emicizumab treatment in 2023
Demographic characteristics Haemophilia B
Severity of haemophilia B
Age at diagnosis according to severity of haemophilia B
Actual age according to severity of haemophilia B
Hepatitis (ever) experienced
Hepatitis (ever) experienced
HIV
Treatment outcomes and bleeding frequency Haemophilia B
Data from year 2023 – sample size
Frequency of bleeding requiring treatment in 2023
Location of bleeds in 2023
Location of bleeds in 2023
Preventive administration in 2023
Preventive administration in 2023
ABR according to treatment regimen Haemophilia B without inhibitor
Annual bleeding rate according to treatment regimen
Annual bleeding rate according to treatment regimen
Location and etiology of bleeds
Detailed treatment of bleeds
Location and etiology of bleeds
Detailed treatment of bleeds
ABR according to centres Haemophilia B (PWHB)
Annual bleeding rate on permanent prophylaxis
Annual bleeding rate on permanent prophylaxis
Annual bleeding rate regardless prophylaxis
Annual bleeding rate regardless prophylaxis
Prophylactic regimens and treatment outcomes
Prophylactic regimens and treatment outcomes
Type of treatment (subgroup of treated patients)
Type of treatment (subgroup of treated patients)
Treatment data and factor consumption Haemophilia A and B
Treatment
Treatment
Treatment
Comparison of treatment in years 2023 and 2022
Comparison of treatment in years 2023 and 2022
Comparison of treatment in years 2023 and 2022
Comparison of treatment in years
Comparison of treatment in years
Comparison of treatment in years
Consumption of drugs
Consumption of drugs
Consumption of drugs
