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Výstupy z registru ČNHP za rok 2019: hemofilie
The status of care for persons with haemophilia registered within CNHP registry Annual Report 2019
Sample size, valid records
Persons with haemophilia (PWH)
Centres participating in CNHP
Basic demographics
Persons with haemophilia and inhibitors in 2019
ABR and treatment regimens in patients with inhibitor
ABR according to treatment regimen in PWH with inhibitor
Demographic characteristics Haemophilia A
Severity of haemophilia B
Age at diagnosis according to severity of haemophilia B
Actual age according to severity of haemophilia B
Hepatitis (ever) experienced
Hepatitis (ever) experienced
HIV
Treatment outcomes and bleeding frequency Haemophilia A
Data from year 2019 – sample size
Frequency of bleeding requiring treatment in 2019
Location of bleeds in 2019
Location of bleeds in 2019
Preventive administration in 2019
Preventive administration in 2019
ABR according to treatment regimen Haemophilia A without inhibitor
Annual bleeding rate according to treatment regimen
Joint and other bleeds according to treatment regimen
Annual bleeding rate according to treatment regimen
Joint and other bleeds according to treatment regimen
ABR according to treatment regimen and age
Joint and other bleeds according to treatment regimen and age
Location and etiology of bleeds
Detailed treatment of bleeds
Location and etiology of bleeds
Detailed treatment of bleeds
ABR according to centres Haemophilia A (PWHA)
Annual bleeding rate on permanent prophylaxis
Annual bleeding rate on permanent prophylaxis
Annual bleeding rate regardless prophylaxis
Annual bleeding rate regardless prophylaxis
Prophylactic regimens and treatment outcomes
Prophylactic regimens and treatment outcomes
Type of treatment (subgroup of treated patients)
Type of treatment (subgroup of treated patients)
Demographic characteristics Haemophilia B
Severity of haemophilia B
Age at diagnosis according to severity of haemophilia B
Actual age according to severity of haemophilia B
Hepatitis (ever) experienced
Hepatitis (ever) experienced
HIV
Treatment outcomes and bleeding frequency Haemophilia B
Data from year 2019 – sample size
Frequency of bleeding requiring treatment in 2019
Location of bleeds in 2019
Location of bleeds in 2019
Preventive administration in 2019
Preventive administration in 2019
ABR according to treatment regimen Haemophilia B without inhibitor
Annual bleeding rate according to treatment regimen
Joint and other bleeds according to treatment regimen
Annual bleeding rate according to treatment regimen
Joint and other bleeds according to treatment regimen
Location and etiology of bleeds
Detailed treatment of bleeds
Location and etiology of bleeds
Detailed treatment of bleeds
ABR according to centres Haemophilia B (PWHB)
Annual bleeding rate regardless prophylaxis
Annual bleeding rate regardless prophylaxis
Annual bleeding rate regardless prophylaxis
Annual bleeding rate regardless prophylaxis
Prophylactic regimens and treatment outcomes
Prophylactic regimens and treatment outcomes
Type of treatment (subgroup of treated patients)
Type of treatment (subgroup of treated patients)
Treatment data and factor consumption Haemophilia A and B
Treatment
Treatment
Treatment
Comparison of treatment in years 2019 and 2018
Comparison of treatment in years 2019 and 2018
Comparison of treatment in years 2019 and 2018
Consumption of drugs
Consumption of drugs
Consumption of drugs
